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  • ENLACE Europe

    Self-assessment form

  • This survey is being conducted by CCI Europe as part of the ENLACE Europe programme which is supported by La Fondation La Roche-Posay and CCI. 

    The ENLACE Europe project seeks to strengthen CCI Europe members’ organisational capability and enable them to be more impactful in the work that they do.

    As a first step in this project, we need to better understand our member organisations’ structure, core activities and capabilities and what kind of learning or support would help them become even stronger and more impactful regardless of their size, structure, and mission. Whether your organisation is large or small, staffed or entirely volunteer‑run, your feedback is important.

    Your feedback will help us identify the skills, tools, and knowledge that organisations like yours need to thrive, grow, and better serve people affected by childhood cancers. Your input will help shape the future training and educational initiatives provided by CCI Europe for its members.

    The survey is confidential and designed to be easy to complete. It should take no longer than 40 minutes to complete. We would appreciate if you could complete the survey by May 31, 2026.

     

    The survey allows for "pause and resume later": please use the SAVE button, and make sure to receive the link to continue editing.

  • Organisation Details

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  • Organisation's objectives

  • Reach and focus

  • What is the geographical reach of your organisation?(select all that apply)*
  • What is the focus of your organisation (select all that apply):*

  • Legal structure

  • Please select one of the options below that best describes your organisation’s legal structure (select all that apply)*

  • Board

  • How many of your board members are:*
    Rows

  • Human resources

  • Who is responsible for your organisation’s operations?*
  • If you have paid staff, do you have a CEO/Executive Director?

  • Medical/Scientific Advisory Committee

  • Does your organisation have a medical/scientific/multi-professional (eg. Psycho-oncologist) advisory committee?*
  • If you do not have a medical/scientific/multi-professional advisory committee, does your organisation secure input and guidance from health professionals on your activities and programmes?

  • Financial resources

  • What is the organisation’s annual budget in Euro?*
  • Typically, what are the key sources of your organisation’s income? (select all that apply)*
  • Does your organisation receive in-kind support (eg. Pro bono professional services etc.)?*

  • Partnership / Affiliations

  • Please indicate whether your organisation collaborates with the following: *
    Rows
  • Please indicate if your organisation is a member of the following:*

  • Communication

  • How do you communicate with different stakeholders? (please select all that apply)*
  • What social media platforms do you use? (please select all that apply):*
  • What is your followership on different social media platforms?*
    Rows

  • Core activities/services

  • Depending on your organisation, some of those activities might not resonate with you. Every organisation is different, and it’s completely normal to offer diverse services, or provide different type of support. Focus on what does apply to you right now. Part of the ENLACE Europe programme is indeed to support in creating new/additional services. 

    Please note that we realize that our members that are FEDERATIONS may not undertake some of the following activities.  For this reason, if you are a federation, please select the activities that both your organisation and your members undertake.

  • Please indicate which of the following services your organisation provides (select all that apply):*
  • Please indicate which of the following educational and support activities your organisation provides (select all that apply):*
  • Please indicate whether your organisation is involved in representing the childhood cancer patient perspective in the following ways (select all that apply):*
  • Please indicate which of the following advocacy activities in which your organisation is involved (select all that apply):*
  • Please indicate which of the following research activities in which your organisation is involved (select all that apply):*

  • Organisational capability self-assessment

  • To what degree do you agree with the following statements? 

  • Governance*
    Rows

  • To what degree do you agree with the following statements? 

  • Financial management *
    Rows

  • To what degree do you agree with the following statements? 

  • People management *
    Rows
  • Communication*
    Rows

  • To what degree do you agree with the following statements? 

  • Advocacy activities *
    Rows
  • Education and support activities *
    Rows
  • Research activities *
    Rows

  • Organisational educational and training needs

  • Which topics is your organisation most interested to learn more about? (Select the top three topics)*
  • Would your organisation be interested to be a MENTOR for some other organisation as part of the ENLACE Europe programme?*
  • Which of the following education/training approaches would be of most interest to your organisation? (select all that apply)*
  • Should be Empty: